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Brain injury blog by survivor

Brain injury blog by survivor

Michelle

Michelle

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Brain injury blog by survivor

Brain injury blog by survivor

Michelle

Michelle

Guest post: Rich Parry-Jones, brain injury survivors husband & carer.

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I have talked before in Support carers about how important family of brain injury survivors are. Their attitude and approach can make a huge difference. So for the first time I have invited a husband & carer to give his valuable input. I introduce to you Rich Parry-Jones:

Brain injury survivor Pauline, with her husband & carer Rich.

Always look for the positives, however small they may be.

It’s 1 year and 1 day since my wife Pauline collapsed, suffering a subarachnoid haemorrhage. This year has been by far the toughest of my life but throughout there has been enough positives, for me to know that she/we will get through this.
 
As mad as it may seem, even when we were giving Pauline CPR I thought,  “thank god this has happened here” …. we were at friends house who is a nurse. Things could have been so much different,  had we not have been .
Having had Pauline rushed to the local hospital, then on to a specialist Neuro ward after discovering a bleed to the brain, we eventually got to speak to a consultant.
 
He explained all of the odds and Pauline against these had come through so far. I knew she was strong and I knew she was a fighter, so I knew she’d come through this.
 
My thoughts then turned to our family, making sure they were all alright, trying to reassure them that everything would be OK. I think some people worried that I was too calm  but I picked my moments, whilst alone to shed a tear or hold my head in my hands.
 
After 7 agonising hours that Pauline was in surgery, I bumped into her anaesthetist and he said “she’s OK”, the best two words I’ve ever heard. I knew from then on that if she could come through this, together we could get through anything. My thoughts then turned back to our 11 year old daughter, family, Pauline’s friends. All been so concerned. Then there was our business. There wasn’t time to feel sorry for myself, question …why us ? None of this would help, so I just thought what do I need to do next ?
 
Pauline was getting stronger by the day and apart from a very deep chest infection was recovering better than any of us could have hoped. I was travelling between our home in Shropshire and The Walton Centre in Liverpool. Not once did I think of it as being chore, as it’s what you do for someone you love.
 

After 2 weeks we finally got her home. This was way ahead of the time you would expect for someone suffering from her brain injury. The following weeks were probably the toughest. Pauline has a huge amount of friends and although the majority meant well, it was very hard keeping them away. I’d started back at work, and keeping an eye on our business (a hairdressing salon). Plus, as well as the day to day family stuff and we always had visitors. There was no down time, no time for us to be alone.

After the initial two week onslaught of constant visitors, it was as if someone had flipped a switch. Only family and a few close friends kept in touch with Pauline and she was left very lonely. People you’d expect to be there for her weren’t and people you wouldn’t expect were. It was definitely an eye opener.

I knew as she got stronger and more confident this would ease, such as once she was able to get out in the car etc. However one of the major issues with a brain trauma is anxiety and Pauline was suffering terribly. I’d try to find time to get her out of the house but it was hard with all of the other commitments. Things were strained but I knew what we’d already been through and this couldn’t be as bad as that .

I knew the stronger she got, the easier things would become. They have over time become easier. Pauline has got stronger and although there is still a long way to go regarding her recovery we’re along way from the times where she would be crying uncontrollably and I wouldn’t be able to say or do anything right . I knew she didn’t want to feel this way and she’d do anything to feel normal again. I always had it in my head  however hard things were, that this is the same person I married, who I love so much and things will be better . Maybe not the same, maybe better. But when we’ve got each other, we can get through anything and that’s all that matters .

 


I think you’ll agree that Rich is a wonderful husband & carer to Pauline. Together they are a team, and draw strength from each other. If you’re ever in Ellesmere, Shropshire please book an appointment at their salon JS Hair. They have a passionate, and dedicated team. Pauline herself previously worked along side Trevor Sorbie MBE, 4 times winner of British Hairdresser of the year. Check them out on their Facebook page.

 

What is the most important thing about the life partner/wife or husband & carer in your life? Is there something you would like them to know?

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3 replies on “Guest post: Rich Parry-Jones, brain injury survivors husband & carer.”

Hello Rich,
I love your post about Pauline and the way you’ve worked through this first year together. I am sure her progress is because you’ve made her feel safe. You need to feel accepted, safe and reassured when your anxiety is high.
My husband Paul has been a great support to me, he continues to encourage me and tell me how far I’ve come in the last 2 years, your right about looking at the positives. Brain injury is hard, I too have felt very lonely, friends have disappeared and some family have been so disappointing.
The support you are giving Pauline is massive and is a great example to your daughter too.
I salute you Rich! I know us brain injury warriors can be up and down at times, it’s so frustrating and exhausting, a loving partner, who is willing to do the hard times as well as the good brings security and endless possibilities.
Best wishes to you and a Pauline for the future.
Jo
P.s I am going to go tell my wonderful hubby how great he is now too!

Hi Jo . I’m glad you like the post . We’ve both found it so reassuring and helpful hearing other people’s experiences and I just wanted to try and give a little back . It is hard at times, as you know but the good times far outweigh the bad . You both sound amazing and we both wish you all the very best . Take care
Rich

Dear Rich,
I enjoyed reading your story and wish you both all the best. I am just over a year in on my brain injury and I understand your partnership. My husband and I have been married just four years this fall. He is my support and cheerleader. Sometimes I feel so guilty that I am not the person he married and many of the things we enjoyed seem out of my reach right now. He helps with my self confidence and is very patient when I try to overcome challenges. We have gotten closer and appreciate what we have even more now.

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